15-year-old Lewis Brimble was recently told by the NHS that they had declined his application for Eculizumab, the only drug that could save his life. He said ‘I have had a rare kidney disease since I was nine years old which progressed into end stage renal failure. I spent two years on dialysis. When I was 11 Mum donated her kidney to me, and I slowly got back to being normal. Then after 15 months my disease came back, with damage to my transplanted kidney. Since then I have been deteriorating. Doctors said there is only one drug, Eculizumab, that can stop my disease from getting worse and forcing me to go back to a nightmare half-life on dialysis. But now, NHS England have rejected my application for the drug simply because it is ‘too expensive’.’